Pediatric IBD & Caregivers
Children and teens with Crohn's or colitis need team-based care and family support. This page gathers parent, sibling, school, and teen resources in one place.
For parents and caregivers
For siblings
Siblings may feel worry, resentment, guilt, or confusion when plans change around flares and appointments. Short, age-appropriate explanations and one-on-one time can help.
For school nurses and 504 teams
- Bathroom access, attendance flexibility, hydration, and medication storage often need explicit plans.
- Ask the GI team for documentation that supports school accommodations.
- Keep emergency contacts and after-hours instructions current.
ICN accommodations toolkit · School rights guide · School 504 overview
For teens
Teens may need privacy, independence, and practical scripts for school, sports, dating, and clinic visits. Practice self-advocacy in small steps before transfer to adult care.
Teens and school hub · High school survival guide · Transition to adult care
Tracking between visits
IBDPal can help families log meals, symptoms, sleep, medications, and notes for clinic visits. Use exports as a conversation aid, not as a diagnosis tool.