Transitioning to Adult IBD Care: ImproveCareNow Transfer Toolkit

Content note: Reviewed for patient education accuracy against publicly available guidance from the Crohn's & Colitis Foundation and major IBD education sources. Last reviewed June 2026. Not individual medical advice.

Educational use only. IBDPal does not provide medical advice, diagnosis, or treatment. Always consult your gastroenterologist or IBD care team for personal decisions.

Young adults with IBD eventually transfer from pediatric to adult-centered care. The ImproveCareNow Transfer Toolkit is a 10-page document co-created by the Transition-Transfer Innovation Community, reviewed by the Patient Advisory Council and Clinical Practice Committee.

Why transition planning matters

Healthcare teams want young adults to navigate the system independently. Transition should feel seamless and happen when a patient is physically and emotionally stable, not only because they aged out of pediatrics.

Inside the toolkit

• Skills adolescents need before transfer
• Self-advocacy tips for appointments and insurance
• Patient narratives with real-life encouragement
• Considerations for clinicians and families at handoff

Download the Transfer Toolkit from the ICN tools page. Pair with college planning, ICN college handbook, and visit prep checklist so you practice carrying your own medical summary.

Photos: Unsplash License (free use).

Source: Transition to Adult Care - Transfer Toolkit by ImproveCareNow (CC license). IBDPal is not an ICN partner.

Medical Disclaimer

This article is for educational purposes only and should not replace professional medical advice, diagnosis, or treatment. Always consult your healthcare provider regarding dietary, medication, or lifestyle decisions.