Life With an Ostomy: ImproveCareNow Ostomy Toolkit for Youth
Posted on June 15, 2026 · ICN Resources
Content note: Reviewed for patient education accuracy against publicly available guidance from the Crohn's & Colitis Foundation and major IBD education sources. Last reviewed June 2026. Not individual medical advice.
Educational use only. IBDPal does not provide medical advice, diagnosis, or treatment. Always consult your gastroenterologist or IBD care team for personal decisions.
Ostomy surgery can feel frightening, but many young people thrive with support and honest information. The ImproveCareNow Ostomy Toolkit was created by the ICN Patient Advisory Council Advocacy Taskforce with the wider ICN community.
Designed for and by pediatric patients
The toolkit is for youth who have had or may need ostomy surgery, whether temporary (resting) or permanent.
Topics covered
- School and telling friends
- Travel and bathroom planning
- Supplies, appliances, and troubleshooting
- Playing sports and staying active
- Clothing choices and body image
- Reducing fear and building awareness
Download the Ostomy Toolkit from ImproveCareNow. See also IBDPal's ostomy basics article and living with an ostomy guide.
Photos: Unsplash License (free use).
Source: Ostomy Toolkit by ImproveCareNow (CC license). IBDPal is not an ICN partner.
Medical Disclaimer
This article is for educational purposes only and should not replace professional medical advice, diagnosis, or treatment. Always consult your healthcare provider regarding dietary, medication, or lifestyle decisions.
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